Rare Disease Day Video Campaign February 28, 2021 After watching the below video for instructions, submit your quick 30-second video to firstname.lastname@example.org. All submitted videos will be compiled and used for our Rare Disease Day 2021 video on
The more we share our story, the more we grow, the more we help. Rare diseases can be hard to gain support for or even knowledge, but there are some really good platforms out there, helping to change that.
Want to make a difference? Spread the word, we have masks!!!! If there was ever a community who needed to protect themselves against viral threats, it is this one. Buy a mask and for each mask sold, one will
Super T’s Mast Cell Foundation was able to work with state representatives to have International Mastocytosis & Mast Cell Diseases Awareness Day, October 20th, recognized by the commonwealth of Pennsylvania, making it the first state ever to recognize the
Lifting my gaze upward, I stare at the immense insurmountable wall. I calculate how I’m to muster the energy to scale it, yet I remain lost in uncertainty. In a way, it is partly my creation. The longer I have
I am proud to see what this organization has accomplished and the support it has given me and my family going through some of the roughest times we have ever had to endure.
We run every year in Taylor’s name to help support this organization. Although we can’t be there with the group, it means the world to put feet to the ground and have it mean so much.
I just received your check in the mail and it felt like a dream come true. We had to leave our home and say goodbye to everyone and everything we knew to fight this disease. This gift is truly a blessing and there are not enough words to say thank you. I will never forget this and will hold this foundation very close to my heart.