Events2018-06-13T19:26:35+00:00

We host events throughout the year to grow funding and awareness, helping to fight of this rare disease. Check back here often to see what events are happen.  If you are interested in hosting an event on behalf of the organization, please contact us directly.

CHANGE A LIFE TODAY

We are always looking for sponsors, volunteers and help to run our events. It doesn’t take much to change a life. Get in touch today and start making the difference.

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